It's really hard to believe that I was diagnosed nearly two years ago. Good Friday will mark the day that changed my life forever. I was so skeptical that day. I wasn't even going to fill the prescription thinking that there was no way I would ever live a 'normal' life, but here I am doing exactly that.
People often ask me if I'm angry that it took the doctors so long to correctly diagnosis me (33 years). I don't know how I could possibly be angry that I now have so many more capabilities. If it wasn't for the correct diagnosis, I would not be pregnant with my third child. How do I answer their question? The answer is simple, at least it is to me.
I grew up as a very happy girl in an unbelievable loving and supportive family. My parents pushed me to do things that were physically challenging, yet I always gave it my best. Plus, I always had a lot of good friends. It was all of my life experiences (good and bad) that made me the person I am today and I like me. Who knows who I would be today if I didn't grow up with the wrong diagnosis. I have to be honest though, I don't know if she would have been as happy as I am. Why? I probably wouldn't have gone to Winona State University where I met my wonderful husband, Steve. Therefore, I wouldn't have my daughter's Winona and Sharon. Everything that I had to endure to make me the person I am today was well worth it!!
Thanks for all of the support! I look forward to sharing even more with you over the next year.
After living the first 33 years of my life thinking I had Spastic Diplegia, a form of Cerebal Palsey, I was correctly diagnosed with Dopa Responsive Dystonia (DRD). I am on new medication and doing things that I never imagined possible. This has changed the lives of my husband and two daughters. I truly believe that I am living a miracle each and every day. Life can't get any better than this!