Last night while trying to fall asleep, I realized that I don't always give the whole picture of my new life. I talk about all the things that I can do and how wonderful they all are. The truth is, I have to take extra care of myself to ensure I can continue a happy, productive life.
Because I have Dopa Responsive Dystonia (DRD), I have to make sure I get a minimum of 8 hours of sleep every night (not always easy with 3 kids). Plus, at least once a day, I need to take a nap. It's funny, because this almost sounds like the life of a two year old!
The brain makes Dopamine while a person sleeps. It then releases it through out the day as needed. My brain doesn't make enough Dopamine while I sleep, which is why I need the extra rest. Stress is also a huge factor with this disorder, so I try my best to live a stress free life. When I have either too much stress or not enough sleep, my balance is off, which can result in falling, I have a difficult time grasping objects with my hand and my arm and legs tighten up.
Yes, this probably doesn't sound like fun, but I am so grateful that there is medication out there that helps me live a much better life! It's up to ME to keep the stress at bay and get plenty of rest.
After living the first 33 years of my life thinking I had Spastic Diplegia, a form of Cerebal Palsey, I was correctly diagnosed with Dopa Responsive Dystonia (DRD). I am on new medication and doing things that I never imagined possible. This has changed the lives of my husband and two daughters. I truly believe that I am living a miracle each and every day. Life can't get any better than this!