I hope you all had a wonderful Christmas! I had a great couple of days with my husband and kids.
Here's a little fun fact about me around the holidays: Even though I'm nearly forty, I still get SO excited on Christmas Eve that I can hardly sleep. Pathetic, I know, but I'm so excited to see my kids faces when they open their gifts. Before my correct diagnosis, I could barely walk on Christmas day simply from not sleeping the night before! These days, I'm exhausted, but I can take more of my l-dopa so I can function better. Sure, I may spill beverages or drop things constantly, but I can laugh it off knowing that the next day will be better.
Unfortunately, my two year old became ill with the noro virus the day after Christmas. The poor little guy was miserable, but I was able to nurse him back to health. Let's just say I also did a lot of laundry as well. Two days later, I was sick as a dog and I should have seen it coming when I felt my muscles cramping up earlier in the day.
I've been feeling better for the last couple days, but goodness it sure does take my body a long time to recoup! I'm jittery and keep losing control of my limbs. Again, I just have to laugh at it! What other option is there?
The whole time I was sick, I couldn't help but thank God for my new diagnosis. Back in the day when I got the stomach bug, my mulches would be in such horrible spasms that I could barely move my arms or legs. My husband would have to practically carry me into the bathroom, help me get dressed and even spoon feed me at times. Plus, I could feel the soreness in my muscles for days afterward! I am so glad those days are over. The memories of those times make being sick in bed bearable. I don't know how I got through it. But then again, I do. I got through them because of my husband, parents and my faith in God.
I hope you all are able to stay healthy and have a Wonderful New Year!
After living the first 33 years of my life thinking I had Spastic Diplegia, a form of Cerebal Palsey, I was correctly diagnosed with Dopa Responsive Dystonia (DRD). I am on new medication and doing things that I never imagined possible. This has changed the lives of my husband and two daughters. I truly believe that I am living a miracle each and every day. Life can't get any better than this!