Tonight is the open house at the elementary school and I am so grateful that I can look forward to this evening, rather than worry about it. In the past, Steve would have to come home from work early, load up my scooter and then we'd be off to the school where I would have to navigate my chair in the sea of adults, who were on a mission to find their child's' classroom. Plus, I'd stick out like a sore thumb as the only disabled parent.
These days, I blend in. I am a "normal" parent and don't have to fret about clogged hallways that clearly aren't ready for a mobility scooter. The BEST part is that I will really be able to walk around my daughter's classroom with ease. I can pretty much guarantee you that I will have tears in my eyes as I help unload the contents of Sharon's backpack in her new desk. And I will no doubt be giving thanks for the life I never thought possible.
Ever since I had the muscle transfer when I was 12 years old, I have had problems with my knees. I do my best to grin and bear it without complaining to others. For some reason my left knee was giving me more problems than normal today (I think a thunderstorm is coming tonight). I knew I needed to go to the YMCA, but at the same time I wasn't sure if I wanted to make the effort since my walk is a bit off with the current knee issue. I sucked it up and went anyway.
I decided to take it easy and ride the recumbent bike rather than walk the track. When I began pedaling, I could feel the grinding on the inside of my knee cap. Because I know my joints and muscles so well, I knew that riding the bike would help. Four miles later, I realized that the discomfort was gone and I couldn't help but smile. I was able to walk out of the gym feeling better than I did going in, which is the whole point, right?
Going to the gym isn't my favorite thing to do in the world, but I know it helps me. Plus, I know that my situation could be much worse. Tonight I'm going to relax and give thanks for the little things in life.
I wouldn't want to say that I missed out on things when I was living with sever mobility issues, but I'm amazed every time I experience something for the first time. This past weekend, I spent both evenings fishing with my husband. In the past, I would dip a line in the water for a little bit, but I would grow tired, reel up my line and then chit chat with him. This weekend was unlike any fishing experience I've ever had.
On our first night out, I caught two nice size Northern's. It was fun to see the excitement on Steve's face as I gasped and shrieked with excitement. The next night we spent three hours with very little fish activity and decided to call it a night. As we trolled back to the landing, I yelled, "I've got a fish!" Five minutes later, I was repeating my words and Steve jumped to get the net, yet again. I was pleased to have caught two very nice Walleye's.
It was fun in reeling the four big fish over the course of two evenings, but the real gift was seeing how much my husband enjoyed watching me experience something he has always loved to do: FISH! I never felt like I was missing out on anything grand, but it's wonderful being able to understand why my husband looks forward to putting a line in the water. Hopefully, he'll invite me along again sometime soon.
I must also add, that my daughters said we should have recorded Steve taking the pictures of the walleyes. They were so slippery and heavy that I just couldn't seem to hold onto them at the same time. Needless to say, it took awhile to get a decent photo.
I'm always up for trying new things. While at the YMCA today, my friend Leann, suggestion trying squats holding a weighted ball. I was pleasantly surprised that I was able to try this new workout without falling on my face!! I couldn't help but ask myself how did I get here? Five years ago I couldn't stand on even ground without assistance. Now look at me!!! I feel great and can't wait to go back and try it again.
After living the first 33 years of my life thinking I had Spastic Diplegia, a form of Cerebal Palsey, I was correctly diagnosed with Dopa Responsive Dystonia (DRD). I am on new medication and doing things that I never imagined possible. This has changed the lives of my husband and two daughters. I truly believe that I am living a miracle each and every day. Life can't get any better than this!