Growing up with Spastic Dipligia, I didn't like dogs. Ok, I hated them. It wasn't any particular dog that made me feel that way, unless you count the time the neighbors dog knocked me down and stood over me in the middle of our dirt road, or the time a different dog peed on my school bag at the bus stop (yes, that really happened). I didn't like dogs, because I felt even more off balance and the possibity of getting injured was very real.
When my neighbor aksed me to take her dog, Daisy, out twice a day all this week, I was ecited to say, "yes!" For three days, I have been greeted twice a day, by a very jumpy dog. She's so excited, that's it's actually difficult for me to get her leash on. Yet, I'm still thrilled that I can do it, even if it takes me a few tries.
I've had the joy of walking this dog to the bus stop at the end of the school day and seeing Sharon's face light up at the sight of her friend, Daisy. For me, I'm just happy that I've been able to try something new and succeed. Who knows, maybe there's a dog in our future. ;)
Another six months has passed, which means another trip to the dentist for me and the kids. It's a great feeling to know that I can take the four of us there without the help of my mom.
For years, my mom would drive us to the dentist and help me every step of the way back to the dental chair. Of course, I was appreciative of her help, but as a mom I longed to do it solo.
Today, the denstist greated the kids and I with a smile, "It's so great to see you like this." He went on to say how wonderful it is to see me walk into the office independtly, which fills my heart with joy.
I will never foreget all of my physical challenges, but today it donned on me that those who knew me prior to my correct diagnosis will never forget the "old" me either. These days, when I walk into a room of strangers, they have no idea what I have gone through. But, when I walk into a room with those from my past, we can't help but take a moment to give thanks for my new mobility in one way or another.
Wow! What a day. I'm beat, yet I'm smiling from ear to ear as I think about everything I did today.
The morning started out with a trip to Costco and the library with all three kids (MEA no school). We then picked up Winona's friend to hang for the day and then stay the night. Fun for the girls!!
This afternoon Sharon and I baked! We made homemade chocolate chip cookie bars (my mom's recipe) and then two loaves of homemade bread. I was so happy that I could take the time to really let Sharon help make these yummy baked goods. After we cleaned up the kitchen, I did a couple loads of laundry and then started making our dinner for tonight: Chicken Enchilada Rice Casserole (thanks Pintrest!).
I have to be honest and say that I know that my body is going to pay for this tomorrow, but who cares?? I was able to create wonderful memories with Sharon in the kitchen this afternoon. I can't think of a better way to hang out together.
Last week, my husband went on a canoe trip with his father up in the Minnesota Boundary Waters. Back in the day, he wouldn't have been able to take a trip like this without us figuring out who would help me take care of the kids.
All week, I felt so blessed that I was able to safely and lovingly take care of my children without the help of others. I was able to get them ready for school, cook dinner, keep the house clean and drive them to all their activities. Granted, I did have to set up a carpool for basketball so I didn't have to delay putting my toddler to bed (everyone needs help from time to time).
I love that my husband was able to spend special time with his dad without worrying about me and the kids. Plus, I love that I didn't have to worry about what the next day would bring, because I knew I could do it!!! What a gift!!
My arms and shoulders are burning. It actually hurts to fold the laundry. And I think this is FANTASTIC!!!
This morning I tried the Yoga Flow class at the YMCA. When I walked into the room, another Y member warned me that this was harder than Body Flow, a class I like to take on Wednesday mornings. I'm sure the look on my face screamed should I run?! because I think Body Flow is challenging. The instructor told me that I could go at my own pace and assured me that I could do it. So, I unrolled my mat and prepared myself for what the next hour was going to bring my way.
Halfway through the hour, my arms were trembling and I actually thought how can I do this another 30 minutes!!! The instructor must have seen the exhaustion in my body language because she informed the class that it's okay to take a break in child's pose. Thank Goodness!!! Off and on for the next 30 minutes I put my body into child pose and I was okay with that, because I knew that I was still trying my best. It didn't matter to me that my peers were mastering the Plank or that they were balancing on the three limbs. What mattered to me, was that I was obviously working my muscles in a way that would have never been possible in years past.
I'm really proud that I went out of my comfort zone and tried this new class. Yes, it was HARD, but I'm really looking forward to going back next week and the week after that. I think it will be a fun way to gain strength and improve my balance. I think it's okay to be proud of myself for doing something that most people could do, but choose not to attempt. I really think that my mobility is a gift from God and I'm not about to waste it!!
Last night was my 20th high school reunion, an evening I will not soon forget. Even though I was nervous to walk into a room full of faces I hadn't seen in two decades, I was excited that I had the ability to WALK independently into a room of faces I hadn't seen in two decades. All evening long, friendly faces came up to me to let me know how much they like my blog and Facebook page and to let me know how happy they are that I was correctly diagnosed and given a new life. Honestly, the support from everyone was more than I could have ever expected. Once again, I am at a loss for words, so I will just say this...thank you for your support, friendship and love. I am truly blessed.
After living the first 33 years of my life thinking I had Spastic Diplegia, a form of Cerebal Palsey, I was correctly diagnosed with Dopa Responsive Dystonia (DRD). I am on new medication and doing things that I never imagined possible. This has changed the lives of my husband and two daughters. I truly believe that I am living a miracle each and every day. Life can't get any better than this!