I hope you all had a wonderful Christmas! I had a great couple of days with my husband and kids.
Here's a little fun fact about me around the holidays: Even though I'm nearly forty, I still get SO excited on Christmas Eve that I can hardly sleep. Pathetic, I know, but I'm so excited to see my kids faces when they open their gifts. Before my correct diagnosis, I could barely walk on Christmas day simply from not sleeping the night before! These days, I'm exhausted, but I can take more of my l-dopa so I can function better. Sure, I may spill beverages or drop things constantly, but I can laugh it off knowing that the next day will be better.
Unfortunately, my two year old became ill with the noro virus the day after Christmas. The poor little guy was miserable, but I was able to nurse him back to health. Let's just say I also did a lot of laundry as well. Two days later, I was sick as a dog and I should have seen it coming when I felt my muscles cramping up earlier in the day.
I've been feeling better for the last couple days, but goodness it sure does take my body a long time to recoup! I'm jittery and keep losing control of my limbs. Again, I just have to laugh at it! What other option is there?
The whole time I was sick, I couldn't help but thank God for my new diagnosis. Back in the day when I got the stomach bug, my mulches would be in such horrible spasms that I could barely move my arms or legs. My husband would have to practically carry me into the bathroom, help me get dressed and even spoon feed me at times. Plus, I could feel the soreness in my muscles for days afterward! I am so glad those days are over. The memories of those times make being sick in bed bearable. I don't know how I got through it. But then again, I do. I got through them because of my husband, parents and my faith in God.
I hope you all are able to stay healthy and have a Wonderful New Year!
This is one of my favorite times of year. I love all of the special family time and yesterday was no different. I had the privilege of baking cookies with the girls in my family.
I love that I was able to not only organize the event, but I was able to mix batter, take cookies in and out of the oven and even snap a photo of my mom with some her granddaughters. Sure, the cookies all taste fantastic, but it's not about that. It's about the laughter, smiles and girly conversations that create such wonderful memories.
Looking at these photos, I can't believe that I can bake. Not long ago, I would have been sitting on the sidelines. These days, I'm right in there getting dirty with everyone else!! What an amazing gift!!!
This blog entry is a week over due, but I figure better late then never, right?
I finally have a new computer!!!! So, I need to get writing!! I have to make this quick though because I have a lot to get done this evening. I just wanted to let you all know that I had a wonderful Thanksgiving up at the cabin.
I can't tell you how nice it is to get away and spend time with my husband and kids without any electronics!! We played board games, the kids ice skated and I helped make the Thanksgiving feast!!
I was thrilled that I could assist my husband with one of the most important meals of the year! I made the stuffing, mashed potatoes and even the cranberry sauce (I prefer the canned jelly stuff and my husband's family teases me about it)! Back in the day, I would sit and watch my husband cook the entire meal. Words can't express the feeling I have that I'm capable of helping him, so I won't even try. All I will say is this: Steve for years you cooked amazing Thanksgiving dinners and you never once complained that I couldn't help and I will be forever grateful. I love you dearly and am grateful to have you by my side.
After living the first 33 years of my life thinking I had Spastic Diplegia, a form of Cerebal Palsey, I was correctly diagnosed with Dopa Responsive Dystonia (DRD). I am on new medication and doing things that I never imagined possible. This has changed the lives of my husband and two daughters. I truly believe that I am living a miracle each and every day. Life can't get any better than this!