I really enjoy sharing my story with others. In fact, I love sharing my story with others. Every time I tell my story I know that there’s another chance that it may be retold to someone who may be misdiagnosed like I was for 33 years.
I’m proud of myself for going out of my comfort zone and starting a blog because those posts brought awareness to two individuals who are now being correctly treated with l-dopa (my miracle drug).
Back in September, I took it a step further and decided to make a video blog. Even though many people thought I was crazy, I decided to come off my miracle drug for a week (with my doctors guidance). My hope was that it would be seen by many to increase awareness about Dopa Responsive Dystonia (DRD), because it is often misdiagnosed as Cerebral Palsy (CP). But more than anything, I wanted it to change the life of just ONE person.
I’m beyond pleased that two women have notified me that because of my video they did a trial of l-dopa and have seen results. You can’t even imagine how happy this makes me. The best part is that I will actually get to meet one of these individuals while I am at Walt Disney World in a couple weeks.
I’ve always felt like Walt Disney World was a magical place, but I can’t imagine how surreal it will feel when I come face to face with someone who I have personally helped. At this point, I’m just as excited to see my two year old look up to Micky, as I am to greet my new friend. And that will be a Magical Day!
Please help me to help others by sharing this video.
After living the first 33 years of my life thinking I had Spastic Diplegia, a form of Cerebal Palsey, I was correctly diagnosed with Dopa Responsive Dystonia (DRD). I am on new medication and doing things that I never imagined possible. This has changed the lives of my husband and two daughters. I truly believe that I am living a miracle each and every day. Life can't get any better than this!