My oldest daughter, Winona, was in her middle school talent show last night. I was so excited to go cheer her on as she played Fur Elise on the piano. A couple minutes before the show was to begin, Steve, Sharon and I took our seats and attempted to corral John into our row. As the first act took the stage, it was clear that John was not about to sit quietly and give the students the respect that they deserved.
Annoyed that I wasn't going to be able to relax and watch the show, I grabbed John and took him to the back of the gym. From 6:35 until 7:40 I held my 25+ lb toddler on my hip and swayed back and fourth to the music. My back grew tired and my left arm became sore, but the appreciation of being able to hold my son for this long meant so much to me. You see, in the past, Steve would usher me into an event like this and find me a chair ASAP, because I could hardly walk at night, and standing for more than a couple minutes wasn't an option.
I was able to enjoy my daughter playing her piano piece AND hold my son as he snuggled into my neck. Plus, I could see Steve and Sharon sitting close together watching all the talent on the stage. All I can say is that it was an incredible night and I have so much to be thankful for: my husband, three children and mobility that allows me to thoroughly enjoy it all.
After living the first 33 years of my life thinking I had Spastic Diplegia, a form of Cerebal Palsey, I was correctly diagnosed with Dopa Responsive Dystonia (DRD). I am on new medication and doing things that I never imagined possible. This has changed the lives of my husband and two daughters. I truly believe that I am living a miracle each and every day. Life can't get any better than this!