I always had really big dreams as a little girl. The thought of being on TV thrilled me. Someone needs to pinch me, because I'm pretty sure that I achieved one of those dreams today! How can it be that my face along with my words were on The Today Show? I was given a platform to advocate about Dopa Responsive Dystonia to millions of people. What an incredible gift that fuels my fire to work even harder to achieve my other dream...to write and publish my life story.
Since my correct diagnosis, I have been writing memoirs about growing up with Spastic Diplegia, a form of Cerebral Palsy. I would love, love, love to see it in print. I want to inspire those who are dealing with difficult medical conditions, express that there really is someone out there for everyone, and to remind everyone to appreciate the little things in life. Until then, I look forward to sharing my blog with all of you!
Thanks for all the support!!
Here's the link to the Today Show!! http://www.today.com/health/woman-misdiagnosed-30-years-gets-relief-simple-pill-t19806
After living the first 33 years of my life thinking I had Spastic Diplegia, a form of Cerebal Palsey, I was correctly diagnosed with Dopa Responsive Dystonia (DRD). I am on new medication and doing things that I never imagined possible. This has changed the lives of my husband and two daughters. I truly believe that I am living a miracle each and every day. Life can't get any better than this!