information about Dopa Responsive Dystonia

The week I stopped taking my Miracle Drug

Frequently Asked Questions
Who correctly diagnosed you and how can I make an appointment with her?
Dr. Martha Nance
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What is Dopa Responsive Dystonia (DRD)? 
The Dystonia Medical Resource Foundation has a great description.  Click here to read it.

Contact Jean with questions/comments

Helpful Links
The Bachmann-Strauss Dystonia & Parkinson's Foundation, Inc.
Children's Hospital at Dartmouth-Hitchcock (CHAD)
Dystonia Advocacy Network
Dystonia Coalition 
Dystonia Europe
Dystonia Medical Research Foundation
​Dystonia Medical Research Foundation Canada
International Parkinson's and Movement Disorder Society
The Kurt B. Seydow Dystonia Foundation
Mayo Clinic 
Tom Seaman (Author of Diagnosis Dystonia: Navigating the Journey)
Tyler's Hope for a Dystonia Cure

A great video that explains Dopa Responsive Dystonia