Wow! How can it be six years already?
So much has changed these past few years. I love that I only need to take 3 pills a day, compared to the 15! I love that I've been able to share my story with the world and help others receive a correct diagnosis, like me. And I LOVE that Steve and I were able to have a third child, our beautiful John. So much has changed, yet, the love and support from my family continues to grow. I feel so much warmth in my heart as I reflect on this on such a holy weekend.
Good Friday and Easter Sunday will never be the same for me again. I never believed that a new medication would be the answer to my prayers. And I certainly never believed that I would be able to live a life of independence. How lucky am I?! I've had numerous people who have read my memoir reach out to me and say, "I will never look at Easter the same again."
On this six year anniversary or should I say birthday, I will continue to give thanks for all that God has given me as well as how much Jesus sacrificed for me...for us. May you feel a closeness to the Lord on this very special weekend. Happy Easter!
I haven't blogged in over two months, simply because I've been listening to my body, which was yelling at me to "SLOW DOWN!"
In order to keep my symptoms at bay, I have to get plenty of rest, stay free of illness and keep my stress to a minimum. Well, I was doing fine with staying healthy and getting plenty of rest, but the stress factor was another story. I was stressed about the release of my memoir, my mom was diagnosed with breast cancer (she's going to be fine) and my husband was part of a big lay off at work.
I had far too much on my mind causing severe pain in my muscles (particularly my left shoulder). Having Steve and the girls rub my back, along with using my Thera Cane and stretching was not helping. I've got a really high pain tolerance, but eventually I couldn't take it any longer and had to go to Urgent Care. Ugh, I was NOT happy about that, especially when they decided to run an EKG! Of course all was well, because it was indeed my DRD symptoms telling me to slow down!! So, I temporarily stopped blogging, took more time out of the day to rest, as well as stretch those cranky muscles.
Often times, things happen that we cannot control, but how we choose to deal with them is entirely our own decision. And we have to listen to our bodies!! I'm pleased to say that the knots in my back are gone, Steve is expected to receive a job offer in the near future and my mom is nearly done with Chemo!
As always, thank you for all your support and love!
After living the first 33 years of my life thinking I had Spastic Diplegia, a form of Cerebal Palsey, I was correctly diagnosed with Dopa Responsive Dystonia (DRD). I am on new medication and doing things that I never imagined possible. This has changed the lives of my husband and two daughters. I truly believe that I am living a miracle each and every day. Life can't get any better than this!