It's summer vacation. So for me, that means busy, busy, busy! In fact, I'm exhausted! I've put nearly 200 miles on my car in three days and I haven't even left the county! At one point yesterday, I was feeling...crabby. I was frustrated that my house was a mess and I was too busy running kids from one end of town to the other and then it hit me...Jean, appreciate the "little things in life."
I had to share this because even I find myself taking things for granted. Five years ago, I couldn't leave my house without the help of an adult. Now, here I am taking Winona to math class, basketball camp and friend's houses. Plus, Sharon, John and I have run so many errands (groceries, Target, Costco, oil change, etc).
I am so tired, yet I'm so happy that I can still function! Life is a gift and it is so important to take time to appreciate ALL OF IT!!!
Family and friends have always been an important part of my life. This weekend, I was able to literally stand up by my cousins side as she said her vows. This was the first wedding that I had been in since my correct diagnosis. And it was wonderful!!!
Back in the day, when I would be asked to be a bridesmaid, I would happily say yes, but as the day came closer my nerves would begin to build. I wasn't nervous about the typical things will my dress fit? or what if I trip on my dress walking up the stairs? Instead, the thoughts that ran through my head were more like How am I going to keep from tripping as I walk down the isle? or Where will I go when I can no longer stand up front? and of course how bad will my tremors be? These internal thoughts kept me from being there for the bride and simply enjoying the day.
This Saturday, I was able to walk down the isle with confidence and stand through the entire ceremony without worrying about anything!! I was able to focus my attention on the sermon and listen to the bride and groom share their special vows without wondering am I gong to fall? For me, this was an amazing gift!!
I wish Jessie and Randy a lifetime of happiness and thank them from the bottom of my heart for including me in their very special day!
My life turned upside down about a month ago when my journey went viral. I never expected to receive multiple phone calls (and a couple knocks on my door) from the big name news shows that millions of people watch/read on a daily basis. To say it was overwhelming for my husband and I would be an understatement. And we got through it, because of the wonderful team (especially Christina) at Media Minefield.
The day we met with them, it was like a load had been lifted from our shoulders. Christina called all the reporters back, scheduled some interviews and guided me through it all with a wonderful message map (I'm sure she did more than I ever knew about!). The map helped Steve and I to stay on track with what our exact message was. All of the interviews went well and nine people have gotten a correct diagnosis because of them!! Can there be anything better than that?!
Today I dropped off homemade cupcakes and flowers as a way to tell Christina and the rest of the team thank you, but it just didn't seem like enough. I want them to know that Steve and I got through this process in one piece because of them. And I have no doubt that we will look back on this in years to come with a smile on our face and gratitude in our heart.
Thank you Media Minefield!!!!! https://www.facebook.com/MediaMinefield?fref=ts
After living the first 33 years of my life thinking I had Spastic Diplegia, a form of Cerebal Palsey, I was correctly diagnosed with Dopa Responsive Dystonia (DRD). I am on new medication and doing things that I never imagined possible. This has changed the lives of my husband and two daughters. I truly believe that I am living a miracle each and every day. Life can't get any better than this!