I feel so fortunate to be living the life that God has given me. It wasn't always easy, but with lots of faith and friends I have survived and become a very strong person. I am often asked if I am angry that it took 33 years for a correct diagnosis. The answer is, "No."
I can honestly say that I am proud of everything I have had to endure growing up with Spastic Diplegia. It was never easy, but it lead me to the person I am today. I have a wonderful husband, three amazing kids and friends that are there for me no matter what. I like me. And I love my life!
I also believe that God made me the way I was so I could teach others what is really important in life. I can walk my kids to the bus stop in the rain, use my hands to put clean sheets on the bed after a child is sick, see the mess on the kitchen counter and hear the kids fighting while I'm on the phone. These are all blessing. Tonight I will be sure to give thanks for my life and will encourage my children to do the same.
After living the first 33 years of my life thinking I had Spastic Diplegia, a form of Cerebal Palsey, I was correctly diagnosed with Dopa Responsive Dystonia (DRD). I am on new medication and doing things that I never imagined possible. This has changed the lives of my husband and two daughters. I truly believe that I am living a miracle each and every day. Life can't get any better than this!