I am really looking forward to the kids winter break from school. We won't have to run out the door to all of the activities (basketball, girl scouts, church classes, etc.) The girls can play with friends and we can just have fun together. It's really hard to believe how much our lives have changed all because of my correct diagnosis.
A year and a half ago, I only left the house if someone was taking ME somewhere! I was home all day long and couldn't do much other than sit and watch television. Steve would always make sure to get me out of the house on the weekend with some type of activity (Costco run or having dinner out). My mom would take me to the gym a couple days during the week and that saved my life. Not only did I need the strength training, but I needed the social interaction.
Now, all I do is run the kids here and there. All I can really think is, "I'm so glad I can do it." They were not able to be this involved in so many activities before, because of me. I know that I was a good mom then, but now I feel like a Super Mom. More often than not, when I'm taking Sharon to basketball she will ask me, "Mom, do you remember when you couldn't drive at night?" To that I normally answer, "I will never forget that."
When I began taking my new medication over a year ago, I had two fears:
1) What if this medication doesn't work forever. I can't live a normal life and go back to the way I used to be.
2) I don't EVER want to forget how challenging my life use to be, because it's necessary that I appreciate every little gift that is given to me.
I hope you will take time out of your busy day to count your blessings. I think you'll be surprised with how many you have. I know I am.
After living the first 33 years of my life thinking I had Spastic Diplegia, a form of Cerebal Palsey, I was correctly diagnosed with Dopa Responsive Dystonia (DRD). I am on new medication and doing things that I never imagined possible. This has changed the lives of my husband and two daughters. I truly believe that I am living a miracle each and every day. Life can't get any better than this!