I came across this wonderful photograph on Facebook the other day. The woman who wrote this has Cerabal Palsy, which is similar to Spastic Dipligia (my original diagnosis). This photo jumped out at me and brought so many memories rushing back to me in a matter of seconds.
I can honestly say that prior to my diagnosis of DRD, I don't recall a time when I went out in public and wasn't stared at. When I was a little girl and would complain about strangers not taking their eyes off my walking, my mom would quickly remark, "Their just looking because your so cute." Of course, I knew that wasn't the reason, but it made me forget about the gawker, even if for only a moment.
I have no doubt that most of the people who had a hard time taking their eyes off the girl with the spastic walk, were good people. I don't judge you or wish you ill will. I only ask that from this point on, you make a conscious effort to not stare at the adults or children who cannot control their physical limitations. The memories I have will be with me forever, but I'd love for the disabled children nowadays to be able to look back at their childhood and not remember receiving a long, blank stare.
After living the first 33 years of my life thinking I had Spastic Diplegia, a form of Cerebal Palsey, I was correctly diagnosed with Dopa Responsive Dystonia (DRD). I am on new medication and doing things that I never imagined possible. This has changed the lives of my husband and two daughters. I truly believe that I am living a miracle each and every day. Life can't get any better than this!